"This disease takes our best and brightest."
Words spoken from a glassy-eyed father, arms folded in defeat, as he tells of his once genius-level violin playing daughter who can now barely hold down a part-time job.
"Where will she go?"
Inquires a small business owner, and mother of a 17 year old anorexic daughter, as she fights back tears to explains that her daughters insurance coverage will soon expire.
"I am here for my daughter."
Echos a voice in the back, where a proud mother and her elegant, college-aged daughter are seated united for their cause.
These and many others spoke at the NEDA STAR Program Legislative Hearing in Madison, WI on March 17th. I was honored to attend and take part in this changing day for eating disorder sufferers.
The Worldwide Charter for Action on Eating Disorders big. Really big.
This legislation will require insurance coverage for eating disorder sufferers. No more bogus assessments, no more worrying about random discharge from inpatient, and finally there will be official recognition for this mental disease.
Here's what you can do:
1) Sign the charter….this takes 6.2 seconds, please do it now!
This is a global, worldwide initiative with major supporters and lobbyists on our side.
Find your government official in your US State or Country of Residence, and participate in the STAR event in your area. If you missed the event in your area, find out who is in charge and call them to find out how you can get involved.
Legislators literally say they have a "rule of ten," meaning if 10 people call or email on a certain issue they will take notice. T-E-N, that's insane how low it is! Please, please, please call and email your legislator. Post back here to let us know who you did your part!
US State Representatives
Other Countries: Please send me links to your government representatives for me to post.
Start talking to people you know and educate them on why this matters. Ask them to sign the charter or make a call.
From the bottom of my heart,
PS In the meantime, here is some information to help you deal with insurance problems in the US:
How to navigate insurance issues
Other Countries: Please send me links to post.